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1.
Int J Environ Res Public Health ; 19(20)2022 Oct 20.
Article in English | MEDLINE | ID: covidwho-2082002

ABSTRACT

PURPOSE OF THE STUDY: There is limited published data on treatment or outcomes of children and young people (CYP) with moderate or severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Here, we describe outcomes of moderate and severe ME/CFS in CYP treated in a tertiary adolescent service. This information is useful when planning services for CYP and families affected by moderate/severe ME/CFS and to guide future management trials and commissioning decisions. STUDY DESIGN: A retrospective review was conducted of medical records of the 27 CYP who received ward-based treatment in 2015. Notes were retrospectively reviewed to assess progress in four markers of wellbeing over the period of treatment: (i) mobility, (ii) education, (iii) sleep and (iv) involvement in social/recreational activities. RESULTS: A total of 23/27 (85%) showed improvement in one or more domains over their period of ward-based therapy. 19/27 (70%) of patients showed improvement in physical ability. In 15/23 patients (65%), there was an improvement in ability to access education, in 12/24 (50%) sleep improved, and 16/27 (59%) demonstrated an improvement in socialising/ability perform recreational activities. CONCLUSION/IMPLICATIONS: A multidisciplinary hospital-based rehabilitation programme for moderate and severe ME/CFS was associated with improvement in at least one area of wellbeing in 85% of the CYP we reviewed. These data may be used as a baseline to evaluate the impact of other models of delivering care for this patient group. It may be useful when considering other groups such as those affected by Post-COVID Syndrome.


Subject(s)
COVID-19 , Fatigue Syndrome, Chronic , Child , Humans , Adolescent , Fatigue Syndrome, Chronic/therapy , Retrospective Studies , Hospitals
2.
Archives of Disease in Childhood ; 107(Suppl 2):A293, 2022.
Article in English | ProQuest Central | ID: covidwho-2019884

ABSTRACT

988 Table 1ConclusionThere were less medicals carried out in 2020, likely a reflection of the reduction in face to face contact with health professionals. The pandemic heightened risk factors for abuse which our data appear to reflect. 26% of infants with concerns for NAI following JPFME had head injuries on imaging and 20% had occult fractures on skeletal survey. This is higher than the average yield expected for this age group described in the literature. These audit findings at a local level, support findings published by a large centre for Paediatric abusive head trauma in the UK in 2020.This audit further provides evidence to consider the risk of occult injuries and support the existence of policies and protocols with a low threshold for information sharing and investigation. This also highlights the importance of training those working with families with young babies to support parents with keeping their babies safe and reducing the risk of non-accidental head injuries in the form of standardised training packages for example.

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